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Index arrow O nás arrow Historie

Úvod do historie Unie Roska Tisk E-mail
Úterý, 15 květen 2007

Nelehká, chronická a velmi obávaná choroba napadne člověka, který tuší, pochybuje, dozvídá se. Než se s realitou smíří, tápe, doléhá spousta problémů: skončím na vozíku, proč právě já, co a kdo za to může? Ani jeho rodina a blízcí si nevědí příliš rady. A lékař stojí před hamletovskou otázkou: „říct či neříct!?“ Sdělit oč běží, ale jak, kdy, komu ano a komu ne?

1. Před půl stoletím v době akademika Hennera platilo: čím toho nemocný s RS o své chorobě ví méně, tím lépe. Prakticky to znamenalo vyhýbat se diagnostickému určení, zamlžovat, kamuflovat, obecně hovořit o recidivujícím zánětu nervů, což ostatně nebylo nepravdou a na druhé straně nesvádělo ani k přezírání rizik.

Roztroušená skleróza patřila do oblasti tabu. Tato účelová tradice odpovídala dimenzím své doby. Avšak postupem času s poznáním, že aktuální agresivita RS otupuje, docházelo k průlomu informační bariéry. Přibývá jasně benigních forem, dlouhých a vydatných remisí, pracovní schopnost a délka přežití se prodlužují. Tím se mírní strach z představy brzké a fatální imobilizace. Zásluhu na tomto příznivém vývoji má včasnější poznání onemocnění, komplexnější přístup včetně sekundární prevence a jistě i racionálnější léčba vlastní choroby i většiny komplikací.

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15 let Unie Roska Tisk E-mail
Úterý, 15 květen 2007
Naše nezávislé humanitární občanské sdružení Unie Roska, Česká MS společnost vzniklo v roce 1992. Navázali jsme na spolky – kluby Roska, které u nás vznikaly již od roku 1983. Původně byla naše činnost téměř zcela svépomocná, ale postupně se transformujeme na laickou MS společnost, ve které jsou společně jak nemocní, tak zdraví se stejným posláním, tj. pomáhat postiženým roztroušenou sklerózou. Je to plně v souladu s principy mezinárodního MS společenství, jehož jsme součástí od roku 1995, kdy se česká MS společnost stala 35. členskou národní MS společností mezinárodní federace MSIF (Multiple Sclerosis International Fedration) se sídlem v Londýně jako přidružený člen. V roce 1999 jsme byli na základě splnění všech podmínek přijmuti za plnoprávného člena jako první národní MS společnost, která prošla institutem přidruženého členství. V roce 2000 byl představitel nezávislé Rosky oceněn dvěma významnými domácími cenami. Bylo to ocenění Výboru dobré vůle-nadace Olgy Havlové a prestižní Výroční cena ministra zdravotnictví. V květnu roku 2001 jsme se stali plnoprávným členemEvropské MS platformy EMSP (European Multiple Sclerosis Platform) při EU se sídlem v Bruselu. Od roku 1999 je pravidelně zařazován do encyklopedie osobností české současnosti KDO JE KDO - WHO IS WHO předseda sdružení.
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