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Index arrow Roztroušená skleróza arrow Publikace

Vydavatelská činnost Tisk E-mail
Středa, 13 červen 2007

Nabídka vydavatelských aktivit občanského sdružení Unie Roska, České MS společnosti

Všechny tituly najdete také v objednávkovém formuláři.

  

A. Časopis Roska

Časopis Roska 3/2011 populárně naučný časopis pro lidi s RS a ty, kteří se jim věnují nebo se o ně zajímají. Obsahuje ucelené informace z různých oblastí. Formát A4, vychází 4x ročně v cyklu jaro, léto, podzim, zima, cca 64 stran s kvalitní přílohou

cena 14 Kč/číslo vč. pošt.
celoroční předplatné 56 Kč vč. poštovného

 

B. Knižní publikace

svazek 2 svazek 2 - Jana Liberdová: Cesta ke zdraví tělesně oslabených - zvláště roztroušenou sklerózou, je to kniha zejména o organizaci života, životosprávě postižených, jejich programovém rozvoji myšlení a konání vedoucí k přiměřeným aktivitám, je to kniha psaná skutečným životem, počet stran 220, jedná se o druhé doplněné vydání

 

cena 40 Kč + poštovné

svazek 3

svazek 3 - Alexander Burnfield: Můj život s "ereskou", je to české vydání světoznámé knížky Multiple Sclerosis A Personal Exploration anglického lékaře-psychiatra, který sám onemocněl roztroušenou sklerózou před více než 30 lety. Jsou to vlastní zkušenosti z aktivního života s touto nemocí. Kniha byla již vydána ve více zemích světa, počet stran 152

 

cena 30 Kč + poštovné 

svazek 4 svazek 4 - Eva Havrdová, Martina Hoskovcová, Jana Dušánková, Eva Krasulová, Martina Puršová:Je roztroušená skleróza váš problém? 2. doplněné přepracované vydání nepostradatelného průvodce pro lidi s RS, jejich rodiny a ty, kdo se jim věnují. Autorky jsou vynikajícími experty v oboru roztroušené sklerózy, počet stran 190

 

cena 40 Kč + poštovné

svazek 5 svazek 5 - Marie Svobodová, Jana Kombercová: Autorehabilitační sestava pro osoby s roztroušenou sklerózou a podobnými obtížemi. Vedle cvičení obsahuje knížka celostní pojetí životosprávy, masáže, akupresuru a stravu, počet stran 220

 

 

cena 40 Kč + poštovné

svazek 6 svazek 6 - Petr Lenský: Roztroušená skleróza – strategie přístupu k chronické nemoci, je další původní autorskou publikací známého, s námi dlouhodobě spolupracujícího, lékaře. Zajímavou a poučnou formou nám doporučuje jaký přístup je vhodné zvolit v životě s touto chronickou nemocí, počet stran182

 

 

cena 35,- Kč + poštovné

svazek 7 svazek 7 – Eva Havrdová, Kamila Řasová, Jana Pilátová, Eva Krasulová: Roztroušená skleróza – první setkání. Ucelené informace zejména pro ty, kterým byla RS nově diagnostikována z pohledu lékaře, fyzioterapeuta i psychologa, počet stran 128

 

 

cena 40,- Kč + poštovné

Benjamín mimo edici – Stefanie Lazai, Stephan Pohl: Benjamín – rodinné starosti, je to mimořádná, bohatě ilustrovaná knížka, která již vyšla v mnoha zemích světa. Je určena nejen dětem rodičů s RS, počet stran 24, vydal Schering

 

cena dle uvážení a možností

Fyzioterapie mimo edici - Kamila Řasová: Fyzioterapie u neurologicky nemocných se zaměřením na roztroušenou sklerózu mozkomíšní, vydal Ceros o.p.s

cena 150,- Kč + poštovné

 

 

Vittorio Cavinimimo edici – Vittorio Cavini: Světem na vozíku, překlad: Vladimír Tomeš. Cestopisná kniha nejen o cestování, která dokumentuje autorovo cesty po celém světě. Je důkazem, že i vozíčkář nemocný RS může i přes své onemocnění aktivně cestovat, překonávat překážky a žít naplno. Vydalo nakladatelství H&H Vyšehradská.

cena 225,- Kč + poštovné

 

Renata Pinkasovámimo edici – Renata Pinkasová: Čas: Čas mládí a hledání. Čas zrání a nacházení. Poutavá básnická sbírka, autorčina prvotina. Pro všechny, kteří si najdou chvilku času na příjemnou poezii, navíc ve velmi originální a krásné grafické úpravě. Vydáno vlastním nákladem, část výtěžku z prodeje je věnováno Unii Roska.

cena 100,- Kč + poštovné

 

jak_mi_ereska_zmenila_zivot_th.jpg mimo edici – Jak mi ereska změnila život. Knížka 17 příběhů lidí s RS, kterou díky grantu společnosti Merck Serono vydal, ve spolupráci s UNIÍ ROSKA, Nadační fond pro podporu zaměstnávání osob se zdravotním postižením

 

minimální příspěvek 50,- Kč + poštovné

 

povolani-potapecmimo edici – Kateřina Kulhavá: Povolání potápěč. Poutavá povídková knížka autorky s RS o potápění včetně potápěčského desatera věnovaná nejen památce zesnulého kamaráda, autorčina prvotina. Pro všechny, kteří mají rádi poutavé vyprávění. Vydáno unií jako příloha časopisu Roska.

 

  bezplatná

Vune zivotamimo edici – Renata Pinkasová: Vůně života. Opět poutavá básnická sbírka, autorčina druhá v řadě. Název zvolila autorka proto,že jí život,přes všechny jeho trampoty a nesnáze voní. Krásná poezie pro všechny rozdělená do tří částí ve velmi originální a krásné grafické úpravě. Vydáno vlastním nákladem pod patronací vydavatelství Roska, část výtěžku z prodeje věnována Unii Roska.

cena 100,- Kč + poštovné

 

Druhy onemocnění RSmimo edici – Kolektiv autorů: Druhy onemocnění RS. Úvod do této problematiky RS. Překlad č. 14  09 časopisu MS in focus mezinárodní RS federace MSIF. Z angličtiny přeložila Klára Grammetbauerová, odborná recenze doc. MUDr. Eva Havrdová, CSc. Vydáno unií jako příloha časopisu Roska.

bezplatná

 

Moje vanilkové dnymimo edici – Ivana Rosová: Moje Vanilkové dny. Autorská sbírka oblíbených fejetonů z let 2006-2010.  Vydáno unií jako příloha časopisu Roska.

bezplatná

 

                                                                                                                                                                        

drobnomalby.jpg Renáta Schubertová: Drobnomalby. Ilustrace Karin Řeháková. Vydalo nakl. Tora ve spolupráci s NF IMPULS.

Psychoterapeutka Renáta Schubertová ve své knížce Drobnomalby sestavila několik příběhů skutečných lidí a jejich boje s nemocí včetně pozitivního našlápnutí do budoucnosti, aby ukázala, jak stav psychiky ovlivňuje i následný průběh nemoci, a jak je proto důležité propojit během léčby tělo a duš

Publikaci lze objednat na adrese: Tato adresa je chráněna proti spamování, pro její zobrazení potřebujete mít Java scripty povoleny . O výši ceny rozhodují sami zákazníci podle toho, kolik chtějí na podporu psychoterapie přispět.

Celkový výtěžek bude věnován na podporu psychoterapie v RS centru v Praze.

                                          Minimální cena knihy je však 129 Kč + poštovné a balné

C. Edukační poznávací brožury

Oranžová oranžová - Eva Havrdová: Léčba RS imunosupresivy
počet stran 13

bezplatná

Zelená zelená - Kamila Řasová, Marcela Řasová, Alena Herbenová, Petr Brandejský, David Doležil: Možnosti fyzioterapie v léčbě RS
počet stran 35

bezplatná

Žlutá žlutá - Libor Zámečník, Květoslav Novák, Viktor Soukup: Roztroušená skleróza, poruchy močení a erekce
počet stran 15

bezplatná

modra_n_th.jpg modrá - Sarah L. Minden, Debra Frankel: Plaintalk: Otevřeně o RS
počet stran 19

bezplatná

hnedocervena_n_th.jpg hnědočervená - Virginia Foster: Alternativní terapie - máme šanci se v nich vyznat?
počet stran 15

bezplatná

Žlutomodrá žlutomodrá - Kolektv autorů: Jak aktivně žít s roztroušenou sklerózou vydal Serono,
počet stran 17

bezplatná

Červená červená - Jana Dušánková: Deprese a RS
počet stran 12

bezplatná

 

D. Audioprogram

CD 1 CD 1 – Jana a Vladimír Zemanovi: Autorehabilitační cvičení. Obsahuje základní sestavu univerzálního cvičení – návody jak cvičit sám doma, rehabilitace s prvky jógy, délka 60 minut

cena 80,- Kč + poštovné

CD 2 CD 2 – Jana a Vladimír Zemanovi: Autorehabilitační cvičení vleže. Obsahuje souhrn základních cviků při cvičení vleže, vhodná autorehabilitace, rehabilitace s prvky jógy, délka 60 minut

cena 80,- Kč + poštovné

CD 3 CD 3 – Jana a Vladimír Zemanovi: Autorehabilitační cvičení vsedě. Opět obsahuje souhrn základních cviků tentokrát při cvičení vsedě, vhodné např. pro vozíčkáře, návod k autorehabilitaci, rehabilitace s prvky jógy, délka 60 minut

cena 80,- Kč + poštovné

CD 4 CD 4 – Antonín Klíma: Autorehabilitační sestava. Jógová rehabilitační sestava, základy cvičení doma, vyladění dechu, délka 90 minut

cena 120,- Kč + poštovné

CD 5 CD 5 – Antonín Klíma: Relaxace. Součástí každého cvičení je bezesporu vhodná relaxace, na tomo disku jsou uvedeny dvě z nich, délka 60 minut

cena 60,- Kč + poštovné

E. Videoprogram

ja_byt_zde_th.jpg DVD/brožura – Já být zde: Autobiograficky příběh mladé ženy s RS, trpící urologickými problémy, zpracovaný krátkým filmem a katalogem v českém a anglickem jazyce.

bezplatné

Metodika a význam průpravných cviků DVD 3 – Antonín Klíma: . Základní jógové rehabilitační cviky, názorný návod jak cvičit, délka 120 minut

cena 90,- Kč + poštovné

Pohybové aktivity s prvky neurorehabilitace pro nemocné RS CD 2 – Kamila Řasová a kol.: Pohybové aktivity s prvky neurorehabilitace pro nemocné RS, délka 34 min., vydal NF IMPULS

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Brána k životu DVD 1 – Brána k životu. Souhrn informací o možnostech a úrovni současné léčby roztroušené sklerózy a formách zlepšování kvality života klientů s touto nemocí. V rámci NPVPOZP vyrobila pro Odbor zdravotně sociálních programů MZ ČR agentura EkoSprint., 36 minut

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Principy řízení pohybu DVD 2 – Kamila Řasová a kol.: Principy řízení pohybu a jejich aplikace v neurorehabilitaci nemocných s roztroušenu sklerózou mozkomíšní. Unikátní instruktážní film s terapeutickými prvky pro odborníky i nemocné. Obsahuje i návod jak „cvičit“.

cena 100,- Kč + poštovné

Profesionalizace rodinné péče... DVD/CD - Qualified Care: Profesionalizace rodinné péče o lidi trpící roztroušenou sklerózou. Multimediální pomůcka z projektu Qualified Care, financovaného Evropskou komisí v rámci programu Leonardo da Vinci. DVD obsahuje 16minutovou videonahrávku, CD podrobný popis možností řešení problémů spojených s roztroušenou sklerózou.

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